Sickleverse exists to make sickle cell patient information simple, relatable, and accessible. Because right now, too many people are left trying to piece things together on their own – between rushed appointments, complex explanations, and information that doesn’t always stick.
I live with sickle cell.
Growing up, I experienced the pain of it first-hand. But alongside that, I also experienced something else – a lack of clear understanding around what was actually happening in my body.
That frustration is what led me to become a doctor.
I wanted to understand it for myself. Because I realised early on that understanding my condition properly was one of the most powerful ways to stay well and avoid pain. Over time, I learned how to navigate the system – both as a patient and as a doctor working in the NHS for over a decade. But seeing it from both sides made something very clear.
Clinicians didn’t have the resources to deliver the care that patients truly needed.
At the same time, working within the system began to take its toll. Years of pressure led to burnout. Stress became a trigger for my sickle cell, and crises became more frequent.
And I had to face a difficult truth: The system I was working in wasn’t built for me to thrive.
So I stepped back from clinical practice. Not to move away from helping people, but to find a better way to do it. I started creating simple, relatable sickle cell education social media, combining my medical training with my own lived experience.
And the response made one thing clear:
People were looking for information they could understand, from someone they could trust.
The Sickleverse was created to meet that need. A globally accessible space where sickle cell is understood clearly, where peer knowledge and support are grounded in medicine, and where people feel more confident managing their health – or the health of someone they care about.
Today, this work continues to grow, through education, community, and innovation. But at its core, the mission is still simple:
To make understanding sickle cell easier for the people living with it every day.
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Sickle cell is often explained in ways that don’t fully land. Sickleverse breaks things down simply and clearly – so you can understand what’s happening in your body, why it matters, and what to actually do with that information.
Living with sickle cell can feel isolating, especially when others don’t fully understand it. Sickleverse brings people together through shared experience, helping you feel less alone and more confident in how you manage your health.
You can’t always rely on others to understand sickle cell – so knowing how to advocate for yourself matters. Sickleverse helps you build the knowledge and confidence to communicate effectively, challenge misinformation, and make decisions that protect your health.
The goal is to bring this vision to life in full – while keeping Sickleverse a free, accessible resource for people living with sickle cell and their families, anywhere in the world.
Everything you see here is designed to improve understanding, confidence, and long-term health outcomes. Some parts are already in motion. Others are waiting to be built.
To make this sustainable, Sickleverse needs support – from individuals, organisations, and partners who believe in improving access to high-quality sickle cell education at scale.
Support the growth of Sickleverse and help keep it free and accessible for people around the world.
DonateIf you have experience in design, development, healthcare, or community building, you can help shape how Sickleverse grows.
Get involvedWork with Sickleverse to expand access to high-quality sickle cell education through funding, collaboration, or shared initiatives.
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