Sickleverse Insights

Clear, practical education to help you understand and manage sickle cell

Intravenous IV fluid drip bag against a blue sky, representing hospital treatment and changing approaches to IV fluids in sickle cell pain crises and vaso-occlusive crisis management.

Why IV Fluids aren't routine anymore in Sickle Cell Crises

Learn why doctors are being more cautious about giving IV fluids to Sickle Cell patients.

Close-up split portrait of a young Black woman of African/Caribbean heritage showing one eye with clear white sclera and the other with yellowing (jaundice), illustrating a common visible sign of sickle cell disease caused by increased bilirubin from red blood cell breakdown.

Why does Sickle Cell make your eyes yellow?

Learn the reason behind yellow eyes in Sickle Cell and the right way to approach it.

Top-down view of a woman stretching on a yoga mat indoors, illustrating safe exercise and flexibility for people living with sickle cell disease

The biggest mistake people make about exercise in Sickle Cell

Learn how to exercise safely with Sickle Cell

A couple at home, woman resting during a sickle cell pain crisis on a sofa with a hot water bottle, blanket, water, and medication nearby, while her partner gently comforts her, showing supportive care and pain management at home.

How to support someone having a sickle cell crisis at home

Learn what to do and what not to do when helping someone manage a sickle cell crisis at home

Chest illustration showing lungs and heart with a pressure gauge, representing pulmonary hypertension in sickle cell disease and its impact on the cardiopulmonary system.

What is Pulmonary Hypertension in Sickle Cell?

Learn about this often overlooked complication of Sickle Cell and how to catch it early.

Close-up of human eye showing iris and pupil in detail

An Introduction to Sickle Cell Retinopathy

Learn what sickle cell gets up to at the back of your eyes

Hip X-ray showing joint replacement due to bone damage, illustrating avascular necrosis in sickle cell disease

The reason bones can quietly die in sickle cell

Learn about Avascular Necrosis, a complication many discover too late

Herbs and plant-based ingredients used in natural remedies, highlighting antioxidants for managing sickle cell disease

Why Sickle Cell Natural Remedies Focus on Antioxidants

The Science behind Moringa, Hibiscus and Vitamin C.

Hands forming a heart towards the sun, representing love, family and inherited conditions

When love meets genetics

An explanation of a little known option for couples with incompatible genotypes

Child looking in mirror seeing himself as a healthy adult, representing improved life expectancy in sickle cell disease

How does sickle cell disease affect life expectancy today?

A reflection on how outdated messages impact the minds of young sickle cell warriors.

Doctor giving prescription compared to patient struggling with medications, representing poor adherence to hydroxyurea in sickle cell disease

What happens when you don't take hydroxyurea as prescribed?

Learn why consistent daily dosing is so important to improve your health

Man in visible pain holding his head while red blood cells fall around him, representing sickle cell pain crisis

How many sickle cell crises per year is too many?

Learn how to recognise when your sickle cell treatment needs to be escalated

Doctor reviewing lab results with patient in hospital, illustrating how tests can appear normal during a pain crisis

Why lab work doesn't rule out a sickle cell crisis

Learn what doctors commonly misunderstand about Haemoglobin S % and sickle cell crisis.

Passenger aeroplane in flight, illustrating how altitude and lower oxygen levels can affect people with sickle cell disease

Flying with Sickle Cell - Oxygen and Altitude

Learn what Sickle Cell warriors should be aware of when flying to prevent crises.

Man in visible discomfort and distress, representing urgent and painful complications like priapism in sickle cell disease

Sickle Cell Priapism Basics

Every male sickle cell warrior needs know about Priapism and how to deal with it.

Man jogging outdoors, representing how intense exercise can trigger pain crisis in sickle cell disease

Why Getting Fitter Can Backfire in Sickle Cell

Important advice about exercising with Sickle Cell

Patient in hospital bed during pain crisis while doctor checks results, illustrating normal blood tests despite symptoms

Why Your Blood Tests Look “Normal” During a Pain Crisis

A lesson on the relationship between Sickle Cell pain and lab numbers

Scales of justice and gavel symbolising patient advocacy and standing up for yourself during hospital care

Sickle Cell Crisis Hospital Advocacy Tips

4 Tips to Self Advocate when in Hospital alone with a Sickle Cell Crisis.

Healthy foods including fruits and vegetables that support nutrition and overall health in sickle cell disease

Can you lower iron overload naturally?

Understand the effect of dietary changes on your iron levels compared to standard treatment.

Young girl measuring her height, representing growth delays that can occur in children with sickle cell disease

What to do if your warrior is smaller than other kids

Learn why it's common for kids with sickle cell to be smaller than their peers

Gloved hand holding blood sample tubes with full blood count terms like haemoglobin, white cells and platelets in background

Your Blood Count explained for Sickle Cell

Understand exactly whats being measured in your full blood count and how it all relates to Sickle Cell.

Woman experiencing fatigue and low energy, a common symptom of anaemia in sickle cell disease

7 Signs of Anaemia you Shouldn't Ignore

Learn the signs you need to be aware of to identify anaemia so you can seek medical review at the right time.