Sickleverse Insights

Clear, practical education to help you understand and manage sickle cell

Doctor reviewing lab results with patient in hospital, illustrating how tests can appear normal during a pain crisis

Why lab work doesn't rule out a sickle cell crisis

Learn what doctors commonly misunderstand about Haemoglobin S % and sickle cell crisis.

Passenger aeroplane in flight, illustrating how altitude and lower oxygen levels can affect people with sickle cell disease

Flying with Sickle Cell - Oxygen and Altitude

Learn what Sickle Cell warriors should be aware of when flying to prevent crises.

Man in visible discomfort and distress, representing urgent and painful complications like priapism in sickle cell disease

Sickle Cell Priapism Basics

Every male sickle cell warrior needs know about Priapism and how to deal with it.

Man jogging outdoors, representing how intense exercise can trigger pain crisis in sickle cell disease

Why Getting Fitter Can Backfire in Sickle Cell

Important advice about exercising with Sickle Cell

Patient in hospital bed during pain crisis while doctor checks results, illustrating normal blood tests despite symptoms

Why Your Blood Tests Look “Normal” During a Pain Crisis

A lesson on the relationship between Sickle Cell pain and lab numbers

Scales of justice and gavel symbolising patient advocacy and standing up for yourself during hospital care

Sickle Cell Crisis Hospital Advocacy Tips

4 Tips to Self Advocate when in Hospital alone with a Sickle Cell Crisis.

Healthy foods including fruits and vegetables that support nutrition and overall health in sickle cell disease

Can you lower iron overload naturally?

Understand the effect of dietary changes on your iron levels compared to standard treatment.

Young girl measuring her height, representing growth delays that can occur in children with sickle cell disease

What to do if your warrior is smaller than other kids

Learn why it's common for kids with sickle cell to be smaller than their peers

Gloved hand holding blood sample tubes with full blood count terms like haemoglobin, white cells and platelets in background

Your Blood Count explained for Sickle Cell

Understand exactly whats being measured in your full blood count and how it all relates to Sickle Cell.

Woman experiencing fatigue and low energy, a common symptom of anaemia in sickle cell disease

7 Signs of Anaemia you Shouldn't Ignore

Learn the signs you need to be aware of to identify anaemia so you can seek medical review at the right time.