1. Who we are

Sickleverse is an online platform providing educational content about sickle cell disease. The site is operated by Dr Lewis Thomas. If you have any questions about this policy or how your data is used, you can contact:
‍
Lewis@drlewisthomas.com

2. What information we collect

We may collect the following information:

• Your name and email address (when you sign up for emails, masterclasses, or downloads)
• Information you provide in forms (e.g. questions, feedback, applications)
• Basic website usage data (such as pages visited, clicks, and time spent on the site)
  

3. How we use your information

We use your information to:

• Send you educational emails, newsletters, and updates
• Provide access to resources such as guides and masterclasses
• Manage registrations for live sessions and events
  
• Improve the website and content based on how people use it
  
• Respond to your questions or enquiries
  

We do not sell your personal data.

4. Tools and services we use

To run Sickleverse, we use a number of trusted third-party platforms. Your data may be processed through these services where necessary:

• Webflow – to host and operate the website
• Kit – to manage email subscriptions and send emails
• Zapier – to connect systems and automate workflows (e.g. passing data between forms and email systems)
  
• Zoom – to manage masterclass registrations and live sessions
  
• Stripe – to process payments and donations (if applicable)
  
• Google Forms – to collect feedback, applications, or survey responses
  
• YouTube – to host and embed video content
  

Each of these providers has their own privacy and security policies.

5. Email communication

If you sign up to the Sickleverse email list, you may receive:

• Educational content
• Updates about new resources or masterclasses
• Occasional relevant announcements
  

You can unsubscribe at any time using the link in any email.

6. Payments

If you make a payment or donation, your payment details are processed securely by Stripe.Sickleverse does not store your full payment details.

7. Cookies and tracking

We may use cookies or similar technologies to:

• Understand how visitors use the website
• Improve user experience
• Measure performance of content
  

Embedded services such as YouTube may also use cookies.
You can control or disable cookies through your browser settings.

8. Sharing your data

We do not sell your personal data. We only share your data with trusted third-party services where necessary to operate the platform (as listed above).

9. Your rights

Under UK data protection law, you have the right to:

• Access the personal data we hold about you
• Request correction of inaccurate data
• Request deletion of your data
  
• Withdraw consent at any time
  

To exercise these rights, contact: lewis@drlewisthomas.com

10. Data security

We take reasonable steps to ensure your data is stored securely and only accessed where necessary.

11. Changes to this policy

We may update this policy from time to time. The latest version will always be available on this page.

12. Important note

Sickleverse provides educational information only and does not replace personalised medical advice from your own healthcare professional.