Sickleverse is an online platform providing educational content, courses, resources and community-based education relating to sickle cell disease.
Sickleverse is operated by Dr Lewis Thomas.
For the purposes of UK data protection law, Dr Lewis Thomas is the data controller for personal information collected through Sickleverse, including through the Sickleverse website and Sickleverse courses hosted on Thinkific.
If you have any questions about this Privacy Policy or how your personal information is used, you can contact:
lewis@drlewisthomas.com
Depending on how you use Sickleverse, we may collect:
Because Sickleverse provides education about sickle cell disease, you may sometimes choose to provide information relating to your own health or the health of a child or family member.
Health information is considered special category personal data under UK data protection law.
You are not required to provide detailed personal medical information in order to access the educational content of the Sickleverse website or courses unless this is specifically requested for a particular service.
Where you voluntarily provide health information, for example through a question, form, live session or support service, we will only use it for the purpose for which you provided it. Where required by law, we will rely on your explicit consent to process this information.
Please avoid sharing more medical or identifying information than is necessary when submitting questions or feedback.
We use your information to:
We do not sell your personal data.
UK data protection law requires us to have a lawful reason for processing your personal information.
Depending on the circumstances, we may rely on:
Contract
We may need to process your information in order to provide something you have requested or purchased.For example, we need your account and contact information to enrol you on a course, process your purchase and give you access to the course.
Consent
We may rely on your consent where you choose to:
You can withdraw your consent at any time.
Legitimate interests
We may process information where it is reasonably necessary to operate and improve Sickleverse, provided that these interests do not override your rights and interests.
This may include:
Sickleverse uses Thinkific to host and deliver online courses, including Sickle Cell Red Flags for Parents.
When you create an account, enrol on a course or purchase a course through our Thinkific site, information may be processed through Thinkific in order to:
-Create your student account
-Process your enrolment
-Provide access to purchased content
-Record your course progress
-Manage your account
-Process transactions
-Provide technical and platform functionality
Thinkific may collect additional technical information relating to your use of its platform in accordance with its own privacy practices.
Payments for Sickleverse products and courses may be processed through Thinkific Payments, Stripe or other authorised payment processing providers where applicable.
These providers process payment information securely on our behalf.
Sickleverse does not normally receive or store your complete debit or credit card number.
We may receive and retain information about the transaction, such as:
-Your name
-Your email address
-The product purchased
-The amount paid
-The date of the transaction
-Payment status
-Transaction or order reference numbers
We may retain transaction records where necessary for accounting, tax, fraud prevention, chargeback management and legal purposes.
If you join the Sickleverse email list, you may receive:
-Educational information about sickle cell disease
-Information about Sickleverse resources and courses
-Invitations to masterclasses, webinars or events
-Updates about new content
-Relevant announcements
-Occasional information about paid Sickleverse products or services
You can unsubscribe from marketing emails at any time using the unsubscribe link included in our emails.
We may still send essential service communications where necessary, for example information about a course you have purchased, changes affecting your account or important information concerning a transaction.
We use third-party platforms to operate Sickleverse. These may include:
These organisations may process personal information on our behalf or as independent data controllers for certain aspects of their services.
They operate under their own privacy and security policies.
We only share personal information with service providers where reasonably necessary to operate Sickleverse or provide the services you have requested.
Some of the technology providers we use operate internationally and may process or store personal information outside the United Kingdom.
Where personal information is transferred internationally, we take reasonable steps to ensure that appropriate safeguards are in place where required by UK data protection law.
Depending on the provider and destination, these safeguards may include UK adequacy regulations or approved contractual protections for international transfers.
You can contact us if you would like further information about international transfers relating to your personal information.
The Sickleverse website and course platform may use cookies and similar technologies to support essential functionality, remember preferences, understand how our services are used and, where applicable, measure performance.
For more information about the cookies we use, why we use them, and how you can manage your preferences, please see our separate Cookie Policy.
We do not sell your personal information.
We may share information with:
-Technology providers that help us operate Sickleverse
-Course hosting providers
-Payment processors
-Email service providers
-Webinar and video platforms
-Professional advisers where reasonably necessary
-Government, regulatory, law enforcement or legal authorities where required by law
We only share information where there is a legitimate reason for doing so.
We keep personal information only for as long as reasonably necessary for the purpose for which it was collected and to meet any legal or regulatory requirements.
The exact period will depend on the type of information.
For example:
We take reasonable technical and organisational measures to protect personal information from:
-Unauthorised access
-Loss
-Misuse
-Alteration
-Disclosure
-Destruction
We also use established third-party providers to operate our website, course platform, email systems and payment services.
However, no internet-based system can guarantee absolute security.
Depending on the circumstances, UK data protection law gives you rights including the right to:
-Request access to personal information we hold about you
-Request correction of inaccurate or incomplete information
-Request deletion of your personal information
-Request restriction of how your information is processed
-Object to certain uses of your personal information
-Request transfer of certain information to you or another organisation
-Withdraw your consent where processing is based on consent
Some of these rights only apply in certain circumstances.
You also have the right to object to your personal information being used for direct marketing at any time.
To exercise any of these rights, contact:
lewis@drlewisthomas.com
We may need to verify your identity before completing certain requests.
If you are concerned about how we have handled your personal information, please contact us first at:
lewis@drlewisthomas.com
You also have the right to make a complaint to the Information Commissioner's Office, the UK's data protection regulator.
Information about making a complaint is available from the Information Commissioner's Office at ico.org.uk.
We may update this Privacy Policy from time to time to reflect changes to:
-Sickleverse services
-The technology providers we use
-Our data processing activities
-Applicable laws or regulations
The latest version will always be made available on the relevant Sickleverse website or course platform.
The date at the top of this policy indicates when it was last updated.
Sickleverse provides educational information about sickle cell disease.
Information provided through the Sickleverse website, courses, emails, videos or other educational resources is not a substitute for personalised medical advice, diagnosis or treatment from your own healthcare professional.
Personal information you provide to Sickleverse does not establish a doctor-patient relationship with Dr Lewis Thomas.