Sickleverse Discord Community Guidelines

Welcome to the Sickleverse Discord Server.

This is a private space for people living with sickle cell and their families to learn, share experiences, and support each other.
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This community supplements the educational content created by Dr Lewis Thomas and is designed to be a safe, supportive, and respectful environment for everyone.

Purpose of the Community
  • Peer support and shared experiences
  • Learning and discussion
  • Accessing educational resources and updates
  • Connecting with others who understand sickle cell
Respect and Conduct
  • Be respectful, supportive, and kind to others
  • Everyone is at a different stage in their journey
  • Avoid judgement, criticism, or dismissive comments
  • Hate speech, discrimination, or abusive behaviour will not be tolerated
No Soliciting or Financial Requests
To protect all members of the community:
  • Do not ask for money, donations, or financial support
  • Do not share bank details, payment links, or fundraising requests
  • Do not promote products, services, or treatments
  • Do not send private messages to members for financial or promotional purposes
Any posts or messages of this nature may be removed and may result in removal from the community
No Promotion or Unauthorised Research
  • This community is not for marketing, advertising, or selling
  • Do not promote treatments, products, or services
  • Do not recruit for research, surveys, or data collection without prior permission
If you would like to collaborate, please contact the Sickleverse team directly
Medical Information
  • This community does not replace medical advice from your healthcare team
  • Members are welcome to share their own experiences
  • Please avoid giving direct medical advice to others
If you have a medical concern, speak to your healthcare professional
Privacy and Safety
  • Respect the privacy of others within and outside of this community
  • Do not share screenshots, messages, or member details outside the community without permission
  • Avoid sharing sensitive personal information such as home addresses, financial details, or identification documents
Moderation
Moderators may guide conversations, remove posts, or take action where necessary to keep the space safe and supportive for everyone.

By being part of this community, you agree to follow these guidelines so we can keep this a safe and supportive space for everyone.