Community Guidelines

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Purpose of the Community

This space is for:

• Peer support and shared experiences
• Learning and discussion
• Accessing educational resources and updates
• Connecting with others who understand sickle cell

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Respect and Conduct

• Be respectful, supportive, and kind to others
• Everyone is at a different stage in their journey
• Avoid judgement, criticism, or dismissive comments
• Hate speech, discrimination, or abusive behaviour will not be tolerated

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No Soliciting or Financial Requests

‍To protect all members of the community:

• Do not ask for money, donations, or financial support
• Do not share bank details, payment links, or fundraising requests
• Do not promote products, services, or treatments
• Do not send private messages to members for financial or promotional purposes

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Medical Information

• This community does not replace medical advice from your healthcare team
• Members are welcome to share their own experiences
• Please avoid giving direct medical advice to others

If you have a medical concern, speak to your healthcare professional.

Privacy and Safety

• Respect the privacy of others within and outside of this community
• Do not share screenshots, messages, or member details outside the community without permission
• Avoid sharing sensitive personal information such as home addresses, financial details, or identification documents.
• Do not contact members privately for financial, promotional, or inappropriate purposes.

• Always respect boundaries when messaging others — unwanted or repeated contact will be treated as harassment and may result in removal from the community.
• Please don't send direct messages to Dr Lewis for medical advice or personal questions, as these may not be responded to.
• Use the appropriate groups within the community so questions can be answered and others can benefit from the discussion

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Moderation

Moderators may guide conversations, remove posts, or take action where necessary to keep the space safe and supportive for everyone.